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 |  bodies 
 This page points to writing about bodies, identity, communication 
                        and robots in digital environments.
 
 It covers -
 
                        introductioncorporeality 
                          and communication - virtuality, disembodiment and computer-mediated 
                          communication addiction, 
                          confession and confusion - claims about 'net addiction', 
                          'cyber dependency', cyberchondria and other disordersthe 
                          body as datacommoditisation 
                          - organ trading and other issuescyborgs 
                          and the posthuman - extropians, posthumans and transhumans 
                          rapture 
                          of the nerds - migrating your consciousness to the 
                          net?the 
                          grim reaper - medical technology, 
                          quality of life, cryonics and other questionsthe 
                          perfectible body - questions 
                          about cosmetic surgery, body modification and genetic 
                          choice in the digital environment  introduction 
 As preceding pages of this guide note, technologies and 
                        markets in the digital environment have been characterised 
                        as involving new
 
                        visions 
                          of the body, ranging from digital CAT scans and biometrics 
                          to claims that we can defeat (or merely indefinitely 
                          defer) deathdisembodiments 
                          of social relations, including chat rooms and dating 
                          services opportunities 
                          for making money, whether through identifying and treating 
                          psychological disorders or through trading body parts Much 
                        of that characterisation is problematic, given the evolutionary 
                        nature of most technology and its social context. Few 
                        aspects of the internet are truly revolutionary, with 
                        concerns about virtuality, mutability or telepresence 
                        for example being a feature of past 'new media'.
 
  corporeality and communication 
 That heading is, we hope, our last genuflection to 
                        the arid end of the sociology of the web, so if you have 
                        got this far don't despair.
 
 A famous  New Yorker cartoon explains that 'on 
                        the web no one knows that you're a dog', although in practice 
                        it either does not matter or you can suss out the essential 
                        characteristics of who is on the other end of the network. 
                        My Tiny Life: Crime & Passion In A Virtual World 
                        (London: 4th Estate 1999) by Julian Dibbell is a somewhat 
                        self-indulgent account of name calling and role playing 
                        among the MUD and MOO aficionados.
 
 We were tempted to suggest that the participants turned 
                        off their machines, spurned the double decaf soy macchiato 
                        and got a life - or merely stopped reading Catherine MacKinnon 
                        - but part of the charm of the net is its opportunities 
                        for cultural diversity. Laura Gurak's  Privacy & 
                        Persuasion in Cyberspace (New Haven: Yale Uni Press 
                        1997) offers another perspective on that world and also 
                        reproduces the cartoon.
 
 We have noted Patricia Wallace's The Psychology of 
                        the Internet (Cambridge: Cambridge Uni Press 1999) 
                        and Connections (Cambridge: MIT Press 1992) 
                        by Lee Sproull & Sara Kiesler. The essays in 
                        Intermedia: Interpersonal Communication in a Media 
                        World (New York: Oxford Uni Press 1986) edited by 
                        Gary Gumpert & Robert Cathcart are also of interest.
 
 Network & Netplay: Virtual Groups On The Internet 
                        (Cambridge: MIT Press 1998) is a valuable collection of 
                        essays edited by Fay Sudweeks. Lynn Cherny's Conversation 
                        & Community: Chat in A Virtual World (Cambridge: 
                        Cambridge Uni Press 1999) is a major sociological study. 
                        Rob Shields edited Cultures of Internet: Virtual Spaces, 
                        Real Histories, Living Bodies (London: SAGE 1996), 
                        more postgrad seminar fodder.
 
 CTheory, an online journal edited by Arthur Kroker, 
                        will beam you up to the high end of postmodern communication 
                        theory. Remember to take your own oxygen supply before 
                        you go: the air up there is thin and stuffy on occasion.
 
 Jayne Gackenbach edited the comprehensive Psychology 
                        & the Internet: Intrapersonal, Interpersonal & 
                        Transpersonal Implications (San Diego: Academic Press 
                        1999), a major primer for behavioural scientists. No 
                        Sense of Place: The Impact of Electronic Media on Social 
                        Behaviour (Oxford: Oxford Uni Press 1986) by Joshua 
                        Meyrowitz is a more general study.
 
 
  addiction, confession and confusion 
 Therapists, the media and consumers discovered what has 
                        variously been characterised as internet addiction (IA), 
                        pathological internet use (PIU), cyberaddiction, 'cyberwidows' 
                        and 'cybersexual addition' or 'web dependency' during 
                        the late 1990s.
 
 Although there is little agreement about the shape or 
                        basis of the addiction it has thrived what appears to 
                        be a thriving therapy industry that has spread from the 
                        US to other countries. Therapists and journalists have 
                        offered lurid depictions of
  
                        dozens 
                          of lives that were shattered by an overwhelming compulsion 
                          to surf the Net, play MUD games, or chat with distant 
                          and invisible neighbors in the timeless limbo of Cyberspace  
                        and of the 'internet junkie' who  
                        betrays 
                          the tell-tale signs of his addiction: his skin is pallid 
                          and covered in spots, he sits nervously hunched, peering 
                          to correct his blighted vision and he has trouble communicating 
                          with friends and family. 
 At just 16 he is emotionally fragile, physically ill 
                          and his future has been compromised by the addiction 
                          which has him in its grip. But when the lights are switched 
                          off he gets online, he could not care less about the 
                          problems it brings. His drug is the Internet ...
 The 
                        label has proved useful in justifying early release from 
                        military conscription in Finland, restrictions on cybercafes 
                        in China 
 In a detailed note elsewhere 
                        on this site we suggest that most studies of cyberaddiction 
                        are deeply problematical because they
 
                        draw 
                          on small (sometimes ludicrously small) and often self-selected 
                          populations, have 
                          no independent oversightare 
                          based on problematical data collection mechanisms (eg 
                          leading questions and poorly structured survey)involve 
                          serious uncertainties about the interpretation of figures 
                          and answers.  
                        The seriousness and prevalence of 'net addiction' is unclear. 
                        Its uniqueness is also uncertain, given the long - and 
                        in retrospect often amusing - history of claims for addiction 
                        to new media or media-related disorders. They include 
                        religious and medical jeremiads about addiction to television 
                        and to the telephone addiction, explored in that note.
 Perhaps more positively, the net has spawned confession 
                        sites such as Dailyconfession.com ("the only place 
                        in the world that you can go to truly confess your sin 
                        (or sins), your transgressions, your humanity, in complete 
                        anonymity") and Grouphug 
                        ("the idea is for anyone to anonymously confess to 
                        anything. it actually feels kind of good to know that 
                        someone will read it").
 
 Why unload on your local pastor, when you are too lazy 
                        to blog and can publish 
                        gems such as
  
                         
                          I do not love my boyfriend, I care, but I dont love 
                          him. He is so dependent, I've been trying to dump him 
                          for a month, but he's just starting his new job, his 
                          b-day is next saturday and i planned a surprise party....
 Besides that... I met someone else, he is not the reason 
                          for dumping my boyfriend, but well i sure like him a 
                          LOT...
 and  
                         
                          I wasted 100 bucks on games including doom 3 and half-life 
                          and I hardly play. Now I'm saving 500 for and Xbox and 
                          a PS2 and some games to go along with it. I doubt I'll 
                          ever play them A 
                        poster to PostSecret 
                        characterised confessions on that site as -  
                        Each 
                          is a silent prayer of hope, love, fear, joy, pain, sorrow, 
                          guilt, happiness, hatred, confidence, strength, weakness 
                          and a million other things that we all share as human 
                          beings... there is no fakeness here It 
                        is unclear whether supposed web addiction is associated 
                        with the 'computer 
                        rage' profiled by Kent Norman or the 'computer anxiety' 
                        highlighted earlier 
                        in this guide. Does it result in cybersuicide 
                        and exacerbate cyberchondria? 
                        
 Christopher Bates, commended by one of the gurus, suggests 
                        that 'cyberaddiction' is caused by "low blood volume", 
                        presumably an advance on past explanations such as witches 
                        on broomsticks.
 
 
  the body as data 
 Notions of the body as data have taken three forms 
                        -
 
                        CAT 
                          and other mapping technologies - looking beyond the 
                          visible body in an extension of more traditional x-ray 
                          and eeg picturesbiometrics 
                          - leveraging fingerprints, retina patterns or DNA as 
                          unique signaturesdata 
                          as destiny - with claims that genetic information is 
                          an accurate predictor of behaviour or health  
                        The third form has been reflected in questions about the 
                        privacy of medical records, insurance and liability policies, 
                        and family planning. It is also evident in debate about 
                        data ownership. Do you own your genetic code? Can a researcher 
                        commoditise code from your body, eg patent cells extracted 
                        during cancer treatment? Questions 
                        of anonymity, identity and representation are explored 
                        in the privacy, censorship, 
                        politics and security 
                        guides on this site.
 
  commoditisation 
 The past 40 years have seen a revolution in how we conceptualise 
                        the body, driven by the harvesting of tissue and the blurring 
                        of traditional boundaries about bodily integrity and commoditisation.
 
 Until last century most commoditisation of bodies was 
                        concerned with labour, whether through slavery (buying, 
                        selling and using the 'human motor'), as employees in 
                        free markets or as indentured workers. Collection and 
                        trade in body parts was largely confined to teeth - recycled 
                        for dentures - and hair (useful for wigs, stuffing matresses 
                        or pillows, and even some textiles).
 
 Recent technologies have involved an expansion of the 
                        trade in full/part blood, extending to kidneys, corneas, 
                        hearts, livers, meninges and other parts for scientific 
                        research or for reuse in a human recipient. Those parts 
                        are sourced from live/dead donors, sold by the indigent, 
                        taken from executed criminals or even stolen from bodies 
                        awaiting autopsy.
 
 Legislation such as the UK Human Tissue Act 1990 
                        and Transplantation of Human Organs Act 1993 
                        (reflected in restrictions at eBay 
                        and other fora) appears to have driven the commercial 
                        body trade offshore from major Western countries rather 
                        than eliminated it. That is unsurprising, given reports 
                        that selling organs from live patients may bring US$4,500 
                        for a cornea or US$25,000 for a kidney and that a 'pre-loved' 
                        spine may fetch US$3,500.
 
 Point of entry into the literature on markets, ethics 
                        and technologies are Stephen Wilkinson's Bodies for 
                        Sale: Ethics & Exploitation in the Human Body Trade 
                        (London: Routledge 2003), Body Shopping: The Economy 
                        Fuelled by Flesh and Blood (Oxford: One World 2008) 
                        by Donna Dickenson, the 1998 Human Tissue Transplantation 
                        Crime (PDF) 
                        by Elizabeth King & Russell Smith of the Australian 
                        Institute of Criminology, Nancy Scheper-Hughes' 2000 Global 
                        Traffic in Human Organs lecture, 
                        Organ transplantation: Meanings & Realities (Madison: 
                        Uni of Wisconsin Press 1996) edited by Stuart Younger, 
                        Renée Fox & Laurence O'Connell, Kidney 
                        for Sale by Owner: Human Organs, Transplantation and the 
                        Market (Washington: Georgetown Uni Press 2005) by 
                        Mark Cherry, Body Parts: Property Rights and the Ownership 
                        of Human Biological Materials (Washington: Georgetown 
                        Uni Press 1996) by E Richard Gold, Property in the 
                        Human Body & its Parts: Reflections on Self-Determination 
                        in Liberal Society (Florence: European University 
                        Institute 2001) by Alexandra George and Black Markets: 
                        The Supply and Demand of Body Parts (Cambridge: Cambridge 
                        Uni Press 2006) by Michelle Goodwin.
 
 
  cyborgs and the posthuman 
 Having shed gender or identity as a Gutenberg artefact, 
                        why not get rid of your body?
 
 Katherine Hayles' How We Became Posthuman: Virtual 
                        Bodies in Cybernetics, Literature & Informatics 
                        (Chicago: Uni of Chicago Press 1999) explores
  
                        theoretical 
                          hypotheses about the total transformation of the human 
                          body that occurs through its interpolation in the nascent 
                          information networks. At successive moments in their 
                          development, digital media have contributed to the destabilization 
                          of an established sense of "reality." But, 
                          at the same time, these new media are used to simulate 
                          signifying objects, the bodies and the worlds they are 
                          rendering obsolete ... an epistemic shift toward pattern/randomness 
                          from presence/absence. This shift affects human and 
                          textual bodies on two levels at once, as a change in 
                          the body (the material substrate) and as a change in 
                          the message (the codes of representation).  Much 
                        of Donna Haraway's cyberfeminist Simians, Cyborgs & 
                        Women: The Reinvention of Nature (London: Routledge 
                        1991) and Chris Gray's 
                        Cyborg Citizen: Politics in the Posthuman Age (London: 
                        Routledge 2001), Ramez Naam's More Than Human: Embracing 
                        the Promise of Biological Enhancement (New York: 
                        Broadway 2005), Love and Sex with Robots (New 
                        York: Harper 2007) by David Levy and The Cyborg Experiments: 
                        The Extensions of the Body in the Media Age (London: 
                        Continuum 2001) edited by Joanna Zylinska strike us as 
                        merely silly. There are pointers to similar studies on 
                        the site of the US Resource Center for Cyberculture Studies 
                        (RCCS).
 There is more bite in Claudia Springer's Electronic 
                        Eros, Bodies & Desire in the Postindustrial Age 
                        (Austin: Uni of Texas Press 1996), Enhancing Evolution: 
                        The Ethical Case for Making Better People (Princeton: 
                        Princeton Uni Press 2007) by John Harris and Digital 
                        People: From Bionic Humans to Androids (Washington: 
                        National Academies Press 2004) by Sidney Perkowitz, also 
                        available online.
 
 The Cyborg Handbook (London: Routledge 1996) is 
                        a weighty collection of theorizing and fiction edited 
                        by Chris Gray, Heidi Figueroa-Sarriera & Steven Mentor. 
                        Just the thing to read while you wait at the cryogenics 
                        facility after pondering Gray's 1997 paper 
                        on The Ethics and Politics of Cyborg Embodiment: Citizenship 
                        as a Hypervalue ... or Stelarc: The Monograph 
                        (Cambridge: MIT Press 2005) edited by Marquard Smith, 
                        a work that for us echoes fin-de-siecle fascination with 
                        Le Petomane.
  
                        The 
                          ontological instability of cyborgs warrants the use 
                          of political technologies such as manifestos and written 
                          constitutions in order to ameliorate the potential of 
                          cyborgization to fatally undermine political self-determination 
                          and the very idea of citizenship. Information 
                        Please: Culture and Politics in the Age of Digital Machines (Durham: 
                        Duke Uni Press 2006) by Mark Poster is more modest.
 
  rapture of the nerds 
 If you are interested in "Posthumanism in the Age 
                        of Pancapitalism" - the cyborg and downloaded virtual 
                        consciousness - you can explore the Extropy 
                        Institute, replete with statements such as
  
                        Humanity 
                          is a temporary stage along the evolutionary pathway. 
                          We are not the zenith of nature's development. It is 
                          time for us to consciously take charge of ourselves 
                          and to accelerate our transhuman progress. No more gods, 
                          no more faith, no more timid holding back. Let us blast 
                          out of our old forms, our ignorance, our weakness, and 
                          our mortality. The future belongs to posthumanity. World 
                        Transhumanist Association founder David Pearce's 
                        The Hedonistic Imperative more modestly claimed 
                        that   
                        genetic 
                          engineering and nanotechnology will abolish suffering 
                          in all sentient life. The abolitionist project is hugely 
                          ambitious but technically feasible. Transhumanism 
                        offers  
                        sights 
                          more majestically beautiful, music more deeply soul-stirring, 
                          sex more exquisitely erotic, mystical epiphanies more 
                          awe-inspiring, and love more profoundly intense than 
                          anything we can now properly comprehend. A 
                        less reverent response to posthumanism and transhumanism 
                        is evident in a Wilson Quarterly article 
                        that somewhat cruelly characterised transhumanists as  
                         
                          a lot of young, pasty, lanky, awkward ... white males 
                          talking futuristic bullshit, terribly worried that we 
                          will take their toys away. Others 
                        have dismissed visions of uploading consciousness to cyberspace 
                        as "rapture of the nerds". UK philosopher Nicj 
                        Bostrom more provocatively asked 
                        whether we are already living (if living is the word) 
                        in a computer simulation, commenting "My gut feeling, 
                        and it's nothing more than that, is that there's a 20 
                        percent chance we're living in a computer simulation". 
                        
 A 2001 response 
                        by Robin Hanson, useful for people who fret that the designer 
                        of the Matrix will decided that for them it is 'game over', 
                        was to try to be as interesting as possible.
 
 Fans of Derrida - love that "carno-phallogocentrism" 
                        - may enjoy Cary Wolfe's Animal Rites: American Culture, 
                        the Discourse of Species, and Posthumanist Theory 
                        (Chicago: Uni of Chicago Press 2003). A slightly less 
                        reverent view appears in Ed Regis's Great Mambo Chicken 
                        and the Transhuman Condition (Reading: Addison-Wesley 
                        1990).
 
 Our short note on the history of the robot in popular 
                        culture, with key landmarks and critical studies, is here.
 
 
  the grim reaper 
 One rationale for post/transhumanism (apart from those 
                        claims of "mystical epiphanies more awe-inspiring 
                        ... love more profoundly intense") has been the desire 
                        to defer or even omit the final meeting with the grim 
                        reaper.
 
 Historians and medical specialists have been underwhelmed 
                        by hype during the past century about miracle diets, implanted 
                        goat gonads, vasectomy, coffee enemas, immortality through 
                        nanotechnology or cryonics. In recent years we have not 
                        seen lifestyle changes, pharmaceuticals, surgical procedures 
                        or genetic re-engineering developments that would justify 
                        claims that the average life expectancy in advanced economies 
                        is far below the biological 'ceiling' and that the next 
                        generation can expect to reach an age of 150 or 225 years.
 
 Ray Kurzweil's Fantastic Voyage: Live Long Enough 
                        to Live Forever (New York: Rodale 2004) forsees infinite 
                        life spans, achievable within twenty or so years through 
                        innovations such as millions of nanobots repairing bones, 
                        muscles, arteries and even brain cells, along with improvements 
                        to our genetic coding downloaded via the net. Unfortunately, 
                        since at least the 1880s there have been recurrent forecasts 
                        that immortality is just twenty years away (so treat your 
                        body well until the technology rides to the rescue) ... 
                        people are still waiting.
 
 In the US life expectancy at birth rose by 21 years during 
                        1900 to 1950 (from 47 to 68 years), climbing another nine 
                        years from 1950 to 2002 (up to 77 years). In 2004 the 
                        federal government forecast a six year extension of the 
                        lifespan by 2075, questioning "the capacity to repeat 
                        the gains in life expectancy that were achieved in the 
                        20th century." Many of those gains were attributable 
                        to improved nutrition, reduced workplace accident rates 
                        and factors such as readier access to potable water and 
                        soap.
 
 Concentration on the date for checking out from the Darwin 
                        Hotel has tended to obscure more serious questioning about 
                        the quality of life - gaining an extra seven years of 
                        bedsores and incontinence pads may not be so desirable, 
                        particularly if you are still stuck with Seinfeld 
                        reruns - and the economic or social impact of extended 
                        longevity. Some states, such as Japan, are now below the 
                        replacement rate and face problems as the workforce 
                        shrinks. Concern about the cost of a rapidly aging population 
                        is leading Chinese policymakers to question maintenance 
                        of the current one-child policy.
 
 Some enthusiasts have decided that deferral is the answer. 
                        The Cryonics 
                        Institute thus proclaims that
  
                        When 
                          and if future medical technology allows, our member 
                          patients hope to be healed and revived, and awaken to 
                          extended life in youthful good health In 
                        practice they are parking bits of wetware - typically 
                        the head - in a freezer, in the hope that future technologies 
                        will somehow solve hitherto insuperable problems with 
                        freezing and subsequent defrosting. 
 Practice post-mortem has not been subject of a digital 
                        revolution: most people are cremated or buried, despite 
                        forecasts in works such as Soylent Green that 
                        they would be eaten by humans rather than microorganisms 
                        and the fabled worms.
 
 The only 'innovations' have been -
 
                        loading 
                          the dear departed's ashes into a rocket that is then 
                          launched skywards, supposedly joining the stars in emulation 
                          of Timothy Leary 
                          and Gene Roddenberry 
                          video gravestones - 
                          with a monitor that displays pre-recorded messages for 
                          grieving families or allows them to express outrage 
                          when a court rejects a video will.  One 
                        promoter suggested 
                        that the gravestones might feature an internet connection 
                        and - shades of Waugh's The Loved One - they 
                        might be coin-operated or swiped with a credit card, with 
                        cemetery operators charging fees to rent headsets.
 Concerns about cybersuicide 
                        are discussed in a supplementary note.
 
 
  the perfectible body 
 Body modification - through cicatrisation, circumcision, 
                        footbinding, infibulation and tattooing - is as old as 
                        civilisation. What is new about the digital environment 
                        is
 
                        ready 
                          access in advanced economies to implanted prostheses, 
                          including artificial joints and pacemakersaccess 
                          to and - as significantly - acceptance of aesthetic 
                          surgery cross-cultural 
                          adoption of physical ideals that extend beyond traditional 
                          use of clothing, cosmetics and hair styling to cosmetic 
                          surgeryaspirations 
                          to achieve the 'perfect body' through diet, exercise 
                          and surgery or - alas - through eugenics Sander 
                        Gilman thus commented that  
                        By 
                          the year 2020, no one will ask you whether you've had 
                          aesthetic surgery, they will ask you why you didn't 
                          have aesthetic surgery. Today it's acceptable to live 
                          in a world where you can change your looks but choose 
                          not to. But in 20 years or so in certain societies - 
                          Brazil, Argentina, more and more the UK, South Korea, 
                          Japan - the question will be 'Why didn't you take advantage? 
                          Why are you walking around bald?'  Blog 
                        guru Richard Scoble went emo about "human augmentation" 
                        in 2008, asking 
                         
                          why couldn't I have a little glass behind my eye that 
                          tells me your Facebook page and tells me a little bit 
                          about you on Wikipedia while I am looking at you?
 I would imagine in 15 years we are going to have something 
                          like that; some sort of visualisation lens or some way 
                          to jack into your optic nerve to put imagery on what 
                          you are actually seeing and augment your human experience.
 
 But that might be 30 years away... I don't want to sign 
                          up for the beta test of that one in case they get it 
                          wrong.
 In 
                        30 years time we won't have flying cars or proton pills 
                        or the other geek fetishes highlighted here.
 For background see in particular Virginia Blum's Flesh 
                        Wounds: The Culture of Cosmetic Surgery (Berkely: 
                        Uni of California Press 2003), Sander Gilman's Making 
                        the Body Beautiful: A Cultural History of Aesthetic Surgery 
                        (Princeton: Princeton Uni Press 1999) and Creating 
                        Beauty to Cure the Soul: Race and Psychology in the Shaping 
                        of Aesthetic Surgery (Durham: Duke Uni Press 1998), 
                        Elizabeth Haiken's Venus Envy: A History of Cosmetic 
                        Surgery (Baltimore: Johns Hopkins Uni Press 1997) 
                        and Cosmetic Surgery, Gender and Culture (New 
                        York: Palgrave 2003) by Suzanne Fraser.
 
 Questions about gender and autonomy are explored in Debra 
                        Gimlin's Body Work: Beauty and Self-Image in American 
                        Culture (Berkeley: Uni of California Press 2002), 
                        Susan Bordo's Unbearable Weight: Feminism, Western 
                        Culture, and the Body (Berkeley: Uni of California 
                        Press 2004), Naomi Wolf's The Beauty Myth; How Images 
                        of Beauty Are Used Against Women (1991), Kathy Davis' 
                        Dubious Equalities and Embodied Differences: Cultural 
                        Studies on Cosmetic Surgery (Lanham: Rowman & 
                        Littlefield 2003) and Kenneth Dutton's The Perfectible 
                        Body: The Western Ideal of Physical Development (London: 
                        Cassell 1995). An upbeat view of biotech appears in Pete 
                        Shanks' Human Genetic Engineering: A Guide for Activists, 
                        Skeptics, and the Very Perplexed (New York: Nation 
                        2005).
 
 John Passmore's classic The Perfectibility of Man 
                        (London: Duckworth 1970) offers a more sobering view of 
                        the history of aspirations and expectations.
 
 Among the vast literature on genetic engineering see John 
                        Harris' Enhancing Evolution: The Ethical Case for 
                        Making Better People (Princeton: Princeton Uni Press 
                        2007), Babies by Design: The Ethics of Genetic Choice 
                        (New Haven: Yale Uni Press 2007) by Ronald Green, Stem 
                        Cell Century: Law and Policy for a Breakthrough Technology 
                        (New Haven: Yale Uni Press 2007) by Russell Korobkin & 
                        Stephen Munzer and Fundamentals of the Stem Cell Debate: 
                        The Scientific, Religious, Ethical and Political Issues 
                        (Berkeley: Uni of California Press 2007) edited by Kristen 
                        Renwick Monroe, Ronald Miller & Jerome Tobis.
 
 The Australian Law Reform Commission's 2003 Essentially 
                        Yours: The Protection of Human Genetic Information 
                        report, 
                        OECD report on the Creation & Governance of Human 
                        Genetic Research Databases (PDF) 
                        and Graeme Laurie's Genetic Privacy: A Challenge to 
                        Medico-legal Norms (Cambridge: Cambridge Uni Press 
                        2002) are also of particular value.
   
 
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